As many of you know we have been planning Zachary's big 1st Birthday Open House this coming Sunday, December 28th. Zachary is still in the hospital and will probably be in the hospital thru the week and weekend. We have decided to POSTPONE his party until January 4th the following Sunday, if he is discharged before it. Please pass this information on if you or anyone you know was planning to attend.
Also a quick update on Zachary. Zachary has had no chest tube drainage for the past 3 days. This a great! Doctors are planning to start feeding the special no fat formula again tomorrow. Unfortunately, Zachary does not tolerate this formula at all. Today in rounds we discussed different options to try and get him to tolerate this formula for the next 6-8weeks. We came to the conclusion we needed to seek guidance from his GI surgeon and doctor. We waited most of the day to hear back from them and around 3pm the doctor called me and said they had a solution. He said they would like to install an NJ feeding tube. This is the tube that goes thru his nose and bypasses his stomach into the small intestine (jejunum). In doing this, the hope is he will tolerate his feeds. If this method works we could be going home later this week or early next week!!
We are sad he will not be home with our family for Christmas again this year. Pray we will be able to have a relaxing and enjoyable Christmas with the two older boys even though little man will not be with us.
God is Goodto us though. We have been so blessed by everyone's prayers and support.
God is Good
MERRY CHRISTMAS!!!
So sorry little man is still having all of these issues.....Poor thing. Praying for all of you to have a blessed Christmas with the bigger guys. Know Zachary is getting the best care available....Know your hearts are heavy...We are planning to be at the party....God is good....
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