This update has been particularly hard to write. How do I explain what is going on at the hospital? How do I explain what Becky and I are going thru? How do I write down the lethargy that is felt by our family?
Zach was on the increased heart meds to help compensate for the additional fluid that he was retaining. He then got too dehydrated, so they backed off the MEDs. Docs added a new heart med (Sedenifil) to help as well. Now he needs oxygen and is retching and throwing up multiple times a day.
Having your child in the hospital repeatedly just sucks. He needs the level of care that they are providing but it sucks knowing that there is nothing we can do for him.
God will carry out his plan regardless of our best efforts. We know that; but this can still be just tiring.
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